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The Villages
Thursday, March 28, 2024

Two Village of Glenbrook residents to appear on Orlando Matters with Ryan Elijah on behalf of Spinal Muscular Atrophy

Two Village of Glenbrook residents will appear on Orlando Matters with Ryan Elijah on Saturday Aug. 12 to discuss Spinal Muscular Atrophy and the 2017 Hope for Children Cure SMA Golf Tournament for SMA Families in The Villages.

From left to right: Al White, Ryan Elijah, Hazel White and Bob Chartock
From left to right: Al White, Ryan Elijah, Hazel White and Bob Chartock

Allan and Hazel White’s grandson Henry, is one of many infants affected by SMA. Their neighbor Bob Chartock coordinated the Cure SMA event in support of the couple’s grandson.

The segment was taped on Aug. 9, but will air this Saturday on Orlando Matters’ Station MY65 WBRW between 7:00 a.m. and 7:30 a.m.

The discussion will raise awareness on SMA, the number one genetic killer of infants, as well as the 2017 Golf Tournament fundraiser.

The 2017 Hope for Children Cure SMA Golf Tournament for SMA Families will be held on Sunday, Sept. 24 at the Hacienda Hills Country Club. It will start at 11 a.m. and includes a shotgun start. The fee to play is $100 and is tax deductible. All net proceeds will go to Cure SMA, in hopes of finding the treatment for this incurable disease.

 

Al and Hazel's grandson Henry White.
Al and Hazel’s grandson Henry White.

To sign up as a golfer, volunteer, sponsor or to donate call Chartock at 352-753-1613 or Jim at 352-751-1726, or click here.

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